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Organiser

ERN Skin Coordination

Venue

ONLINE

Registration

Registration is open only to ERN-Skin members (reference centres, affiliated partners & SKIN ePAG Advocates)

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Agenda

ERN-SKIN Virtual Board Meeting - Friday 2nd October 2020

9 am
10 am
11 am
12 pm
1 pm
2 pm
3 pm
4 pm
5 pm
BOARD MEETING
<strong>09:00</strong> ERN-Skin at a glance in 2020<br> <strong>09:10</strong> ERN-Skin registry: the pilot is ready!<br> <strong>09:40</strong> ERN-Skin research: EJP-RD ERN-Skin applications & COVID-19 project<br> <strong>10:00</strong> SPOT App: next steps<br> <strong>10:20</strong> ERN-Skin Patient journey and satisfaction questionnaire<br> <strong>10:40</strong> ERN-Skin e-training platform demo<br> <strong>10:50</strong> Clinical Patient Management System: release of a simplified tool<br> <strong>11:00</strong> ERN-Skin website: intranet demo<br>

09:00 ERN-Skin at a glance in 2020
09:10 ERN-Skin registry: the pilot is ready!
09:40 ERN-Skin research: EJP-RD ERN-Skin applications & COVID-19 project
10:00 SPOT App: next steps
10:20 ERN-Skin Patient journey and satisfaction questionnaire
10:40 ERN-Skin e-training platform demo
10:50 Clinical Patient Management System: release of a simplified tool
11:00 ERN-Skin website: intranet demo

THEMATIC GROUP MEETINGS
Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease

Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease

THEMATIC GROUP MEETINGS
Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

THEMATIC GROUP MEETINGS
Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

THEMATIC GROUP MEETINGS
Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

THEMATIC GROUP MEETINGS
Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN

Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN

Lunch break - Posters viewing

THEMATIC GROUP MEETINGS
Severe cutaneous drug reactions

Severe cutaneous drug reactions

THEMATIC GROUP MEETINGS
Mendelian connective tissue disorders

Mendelian connective tissue disorders

THEMATIC GROUP MEETINGS
Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders

Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders

THEMATIC GROUP MEETINGS
Mendelian connective tissue disorders

Mendelian connective tissue disorders

THEMATIC GROUP MEETINGS
Autoimmune Bullous diseases

Autoimmune Bullous diseases

THEMATIC GROUP MEETINGS
Ichthyosis and Palmoplantar Keratoderma

Ichthyosis and Palmoplantar Keratoderma

THEMATIC GROUP MEETINGS
Cutaneous diseases related to DNA repair disorders

Cutaneous diseases related to DNA repair disorders

ERN-SKIN Virtual Board Meeting - Friday 2nd October 2020