Thematic group meetings (only for ERN-Skin members)

For 2026, our CPMS and Thematic Group Meetings will follow a new structure. There will be 3 main sessions in which each group will have a dedicated meeting:

  • 1st session: February 2026
  • 2nd session: May to June 2026
  • 3rd session: September to October 2026

New meeting format

  • Total meeting duration: 2 hours
  • Each meeting will begin with the CPMS case presentation(s) (1 hour)
  • Followed by the Group Meeting (1 hour)

These meetings are open for all ERN-Skin members (clinicians and patient representatives). If you have any questions, please contact:

Timeline

Chronological table

1st Session

Group

Date

Time

EB

03/02/2026

12:30 pm – 2:30 pm

ALLOCATE

04/02/2026

To be confirmed

IPPK

10/02/2026

4:30 pm – 6:30 pm

MOSAIC

13/02/2026

2:30 pm – 4:30 pm

MCTD

18/02/2026

1:30 pm – 3:30 pm

DNA+

24/02/2026

1:30 pm – 3:00 pm

ED

26/02/2026

2:30 pm – 4:30 pm

AIBD

ToxiTEN

26/02/2026

6:00 pm – 7:00 pm

2nd Session

Group

Date

Time

EB

12/05/2026

12:30 pm – 2:30 pm

MOSAIC

15/05/2026

2:30 pm – 4:30 pm

IPPK

19/05/2026

4:30 pm – 6:30 pm

DNA+

26/05/2026

1:30 pm – 3:00 pm

MCTD

27/05/2026

1:30 pm – 3:30 pm

ED

28/05/2026

2:30 pm – 4:30 pm

AIBD

ToxiTEN

18/06/2026

6:00 pm – 7:00 pm

3rd Session

Group

Date

Time

EB

15/09/2026

12:30 pm – 2:30 pm

AIBD

ToxiTEN

17/09/2026

6:00 pm – 7:00 pm

IPPK

29/09/2026

4:30 pm – 6:30 pm

ED

08/10/2026

2:30 pm – 4:30 pm

DNA+

13/10/2026

1:30 pm – 3:00 pm

MCTD

14/10/2026

1:30 pm – 3:30 pm

MOSAIC

23/10/2026

2:30 pm – 4:30 pm

Previous thematic group meetings

14th January 2025 from 12:30 pm – 1:30 pm CET 

Thematic Group meeting on Cutaneous Diseases related to DNA repair Disorders and photosensitivity (DNA+)

*Please note that there is also a DNA+ CPMS meeting from 1:30 pm to 2:30 pm CET (right after this one).

27th January 2025 from 3:30 pm – 4:30 pm CET

Thematic Group meeting on Ichthyosis and Palmoplantar Keratoderma (IPPK)

5th February 2025 from 1:30 pm – 2:30 pm CET

Mendelian Connective Tissue Disorders (MCTD)

*Please note that there is also a MCTD CPMS meeting from 2:30 pm to 3:30 pm CET (right after this one).

12th February 2025 from 8:30 am – 10:30 am CET

Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN (ALLOCATE)

12th February 2025 from 6:00 pm – 7:00 pm CET

AutoImmune Bullous Diseases (AIBD) and Severe Cutaneous Drug Reactions – Toxic Bullous Diseases (ToxiTEN)

14th February 2025 from 2:30 pm – 3:30 pm CET

Cutaneous Mosaic Disorders Naevi & Naevoid skin disorders, complex vascular malformations and vascular tumors (MOSAIC)

 27th February 2025 from 12:30 pm – 1:30 pm CET

Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease (EB)

*Please note that there is also an EB CPMS meeting from 1:30 pm to 2:30 pm CET (right after this one).

 27th February 2025 from 2:30 pm – 3:30 pm CET

Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders (ED)

*Please note that there is also an ED CPMS meeting from 3:30 pm to 4:30 pm CET (right after this one).

 4th March 2025 from 6:00 pm – 7:00 pm CET

Genodermatoses 2 big group

11th April 2025 from 2:30 pm – 3:30 pm CET

Cutaneous Mosaic Disorders Naevi & Naevoid skin disorders, complex vascular malformations and vascular tumors (MOSAIC)

22nd April 2025 from 9:30 am – 10:30 am CET

Mendelian Connective Tissue Disorders (MCTD)

*Please note that there is also a MCTD CPMS meeting from 10:30 am to 11:30 am CET (right after this one).

12th May 2025 from 4:30 pm – 5:30 pm CET 

Ichthyosis and Palmoplantar Keratoderma (IPPK)

*Please note that there is also an IPPK CPMS meeting from 5:30 pm to 6:30 pm CET (right after this one).

13th May 2025 from 1:30 pm – 2:30 pm CET 

Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders (ED)

*Please note that there is also an ED CPMS meeting from 2:30 pm to 3:30 pm CET (right after this one).

20th May 2025 from 12:30 pm – 1:30 pm CET

Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease (EB)

*Please note that there is also an EB CPMS meeting from 1:30 pm to 2:30 pm CET (right after this one).

22nd May 2025 from 2:30 pm – 3:30 pm CET

Cutaneous Diseases related to DNA repair Disorders and photosensitivity (DNA+)

 11th June 2025 at 6:00 pm CET

AIBD-Toxiten big Group Meeting

9th September 2025 from 9:30 am – 10:30 am CET

Mendelian Connective Tissue Disorders (MCTD)

*Please note that there is also a MCTD CPMS meeting from 10:30 pm to 11:30 pm CET (right after this one).

 9th September 2025 from 1:30 pm – 2:30 pm CET

Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders (ED)

*Please note that there is also an ED CPMS meeting from 2:30 pm to 3:30 pm CET (right after this one).

11th September 2025 from 12:30 pm – 1:30 pm CET – Postponed to 9th October 12:30 pm – 1:30 pm CET

Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease (EB)

*Please note that there is also a EB CPMS meeting from 1:30 pm to 2:30 pm CET (right after this one).

12th September 2025 from 2:30 pm – 3:30 pm CET

Cutaneous Mosaic Disorders Naevi & Naevoid skin disorders, complex vascular malformations and vascular tumors (MOSAIC)

23rd September 2025 from 12:30 pm – 1:30 pm CET

Cutaneous Diseases related to DNA repair Disorders and photosensitivity (DNA+)

11th September 2025 from 12:30 pm – 1:30 pm CET – Postponed to 9th October 12:30 pm – 1:30 pm CET

Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease (EB)

*Please note that there is also a EB CPMS meeting from 1:30 pm to 2:30 pm CET (right after this one).

6th October 2025 from 2:30 pm – 3:30 pm CET

Ichthyosis and Palmoplantar Keratoderma (IPPK)

*Please note that there is also an IPPK CPMS meeting from 3:30 pm to 4:30 pm CET (right after this one).