Here is a list of national and international, online and on-site events related to rare skin diseases
Please note that most online events share their content and presentation on their platform for several months: feel free to check them out!
RE(ACT) Congress and IRDiRC Conference
13-15 January 2021
Virtual
Boosting the development of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook
21-22 January 2021
Virtual
24th Annual Meeting European Dermatologie Forum
21-23 Januray 2021
Lucerne, Switzerland
Implementation of EUPID by ERN Registries
02 February 2021 – 16:00-17:00 CET
Virtual
10th Conference of the European Hidradenitis Suppurativa Foundation (EHSF)
11-12 February 2021
Virtual
11th Meeting on Rare Diseases
27 February 2021
Dessau, Germany
National Conference of Pediatric Dermatologie
19 March 2021
Brno, Czech Republic
20th International Vasculitis and ANCA Workshop
18-21 April 2021
Dublin, Ireland
G20 ADI-ADMG Dermatology International Congress
28-30 April 2021
Palermo, Italy
20th ESPD Annual Meeting
12-14 May 2021
Virtual
Symposium on “Connective Tissue, Immune System & Rare Ehlers Danlos Syndromes”
28-29 May 2021
Virtual
Le malattie rare in dermatologia pediatrica – 16e Giornate
4-5 June 2021
Rome, Italy
EMBO Workshop
14-16 June 2021
Barcelona, Spain
Grand Rounds on Atopic Dermatitis
3 July 2021
Virtual
Annual Meeting of Bristish Association of Dermatologists
6-8 July 2021
Virtual
EJP RD Advisory Committee for Therapeutics (ACT) workshop (ERN-focused event)
7-8 July 2021
Virtual
19th International Conference on Behçet’s Disease
8-10 July 2021
Athens, Greece
21st European Dermatology Congress
12-13 July 2021
Virtual
Skin care, Dermatology and Allergic Diseases
6-7 September 2021
Prague, Czech Republic
Debra International Congress 2021
16-19 September 2021
Virtual
EJP RD Resource Webinar: European Genome-Phenome Archive (EGA)
20 September 2021
Virtual
International Conference on Orphan Drugs and Rare Diseases
20-21 September 2021
Virtual
14th World Congress of Paediatric Dermatology 2021
22-25 September 2021
Edinburgh, UK
50th Anniversary ESDR Annual Meeting
22-25 September 2021
Virtual
EJP RD International Summer School on Rare Disease Registries and FAIRification of Data
27 September – 1 October 2021
Virtual
30th EADV Congress
29 September – 2 October 2021
Virtual
EJP RD Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs
30 September – 1 October 2021
Leiden, The Netherlands
Euvas Vasculitis Course
30 September – 02 October 2021
Firenze, Italy
5th World Dermatology Congress
21-22 October 2021
London, UK
Epidermolysis bullosa course 2021
11-12 November 2021
Virtual
Second international Netherton Congress
18-19 November 2021
Virtual
JDP – Journées Dermatologiques de Paris
30 November – 4 December 2021
Paris, France
International Conference on Rare Diseases and Orphan Drugs
27-28 December 2021
Virtual
21th caribbean dermatology symposium
19-25 January 2022
Virtual
24th Annual Meeting European Dermatologie Forum
21-25 Januray 2022
Montreux, Switzerland
11th Conference of the European Hidradenitis Suppurativa Foundation (EHSF)
5-12 February 2022
Virtual
Journées Atlantiques de Dermatologie Pédiatrique
24 – 25 February 2022 – 16:00-17:00 CET
Nantes, France
17th EADV Symposium
12 – 14 May 2022
Ljubljana, Slovenia
21th ESPD Annual Meeting
20-22 May 2022
Munich, Germany
World Congress on Rare Skin Diseases
7-9 June, 2022
Paris, France
11th European Conference on Rare Diseases and Orphan Products
17 – 18 juin 2022
Nice, France
SPIN 2022 – Skin Inflammation & Psoriasis International Network
6-8 July 2022
Paris, France
31st EADV Congress
07-11 September 2022
Milan, Italy
6th Cutis Laxa Days
14 – 16 September 2022
Ghent, Belgium
51st Annual ESDR Meeting
28 September – 1 October 2022
Amsterdam, The Netherlands
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ERN-Skin Workshop : Epidermolysis bullosa: from genes to translation into therapies
The workshop will deliverhttps://www.ejprarediseases.org/our-actions-and-services/training-and-education/ern-workshops/ expert knowledge on the following aspects of EB: clinical and genetic basis, wound and interdisciplinary management, how to design and conduct clinical trials, gene therapy, and models used in translational research.
End of March 2023 (Preliminary date)
Freiburg, Germany
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