The ERN application was born from a joint action of 3 EADV task forces and the FRT Rare Skin Diseases Network active in the ﬁeld for more than 10 years. After being approved by the Board of Member States, the ERN-Skin began its journey on March 9, 2017 along with the 23 other ERNs.
It covers the medical field of rare, complex and undiagnosed skin disorders in children and adults. Most of them are exclusively cutaneous/sub-cutaneous and often present a severe prognosis, because of the intensity of the cutaneous/mucosal involvement, the risk of cancer for some of them, or the frequent multisystemic involvement directly or secondary to skin damages.
The rarity of patients suffering from rare skin diseases and the difference in their aetiologies and clinical features make research and knowledge slow and difficult, leaving many of them without proper diagnosis for their condition or adequate treatments.