25th April 2023, from 1pm-2pm CET – “Modelling adult stem cells and their niche in health and disease with epithelial organoids”

Presented by Dr Kai Kretzschmar (University Hospital Würzburg, Germany)

Chaired by Holm Schneider (ERN-Skin Thematic group on Ectodermal Dysplasia)

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28th March 2023, from 1pm-2pm CET – “A specific study on XP”

Presented by Pr. Kevin-Thomas Koschitzki

Chaired by Dr. Fanny Morice-Picard (ERN-Skin Thematic group on DNA repair disorders and photosensitivity)

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28 February 2023, from 2pm – 3pm CET – “The role of ST18 in the pathogenesis of pemphigus vulgaris”

Presented by Dr Eli Sprecher (Tel-Aviv Sourasky Medical Center, Israel)

Chaired by Branka Marinović (ERN-Skin Thematic group on AutoImmune Bullous Diseases)

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31 January 2023

«Developmental mosaicism in human skin disorders: a primer for the medical scientist»

Speaker: Marco Castori, U.O.C. Genetica Medica IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II, San Giovanni Rotondo

Chaired by Andrea DIOCIAUITI, Thematic group on Cutaneous Mosaic Disorders – Nevi & Nevoid Skin Disorders  and Complex Vascular Malformations and vascular Tumours

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13 December 2022

“The role of ST18 in the pathogenesis of pemphigus vulgaris”

Speaker: Eli SPRECHER, Tel Aviv Sourasky Medical Center Ichilov, Israël

Thematic group on Autoimmune bullous diseases

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29 November 2022 !!!ERN-Skin ALLOCATE group and SPIN joint webinar!!!

“Dermatomyositis : the dermatologist perspective” 

Speaker: Paolo AMERIO, Chieti’s Hospital, Italy

Chaired by Vincenzo Bettoli, University of Ferrara, Italy and Francesca Prignano, University of Florence, Italy

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25 October 2022

“The psychological care of and potential psychotherapeutic interventions for patients with Stevens-Johnson syndrome and toxic epidermal necrolysis – The development of a Quality of Life outcome measure (QoLTEN)”

Speaker: Paulin O’REILLY,University of Limerick, Limerick, Ireland

Chaired by Saskia ORO, Thematic group on ToxiTEN – Severe cutaneous drug reactions

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27 September 2022

“An EJPRD funded patient centered networking meeting: The 6th Cutis Laxa days as an example”

Speaker: Bert CALLEWAERT and Marie-Claude BOITEUX

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24 May 2022 

«What’s New about the Ichthyoses»

Speaker: Amy PALLER, Ann & Robert H. Lurie Children’s Hospital of Chicago, Northwestern Memorial Hospital, USA

Chaired by Juliette MAZEEREUW, Thematic group on Ichthyosis & Palmoplantar Keratoderma

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26 April 2022

«Therapies for dystrophic EB: how close are we from cure» – title to be confirmed

Speaker: Peter MARINKOVICH, Stanford Hospital and Clinics, USA 

Chaired by Christine BODEMER & Cristina HAS, Thematic group on Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier, Hailey-Hailey

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31 March 2022

« The past, present and future of autoimmune blistering diseases »

Speaker: Dedee MURREL, St. George Hospital, UNSW Faculty of Medicine, Sydney, Australia 

Chaired by Branka MARINOVIC

Thematic group on Autoimmune Bullous diseases

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22 February 2022

Opposite Sides of a Spectrum: Oral Wound Healing vs Chronic Non-healing Wounds
Presented by Maria Morasso, Laboratory of Skin Biology, NIAMS, Bethesda, USA

chaired by Smail Hadj-Rabia

Thematic group on Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders 

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25 January 2022 

Reduced levels of prostaglandin I₂ synthase: a distinctive feature of the cancer-free trichothiodystrophy presented by Donata Orioli

chaired by Fanny Morice-Picard

Thematic group on Cutaneous diseases related to DNA repair disorders

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14 December 2021 

Pathways to address cutis laxa syndromes presented by Bert Callewaert

chaired by Raoul Engelbert

Thematic group on Mendelian connective tissue disorders

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30 November 2021   

Adamantiades-Behcet’s disease – Andreas Altenburg

Chaired by Christos Zouboulis (Dessau, Germany)

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26 October 2021  

Cytokines of the IL-1 family in severe cutaneous adverse drug reactions – Emmanuel Contassot 

Chaired by Saskia Oro (Paris, France)

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28 September 2021 

Nevus pathophysiology, Melanoma risks and therapeutic expectations – Sarah Guégan

Chaired by Olivia Boccara (Paris, France)

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6 July 2021  

Combined cell and gene therapy for Epidermolysis Bullosa – Michele De Luca

Chaired by Cristina Has (Freiburg, Germany) / Christine Bodemer (Paris, France) 

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29 June 2021

Genetic discoveries in ichthyosis – Keith Choate 

Chaired by Juliette Mazereeuw-Hautier (Toulouse, France)