Next webinars

27 September 2022, from 1pm – 2pm CET 

“An EJPRD funded patient centered networking meeting: The 6th Cutis Laxa days as an example”

Speaker: Bert CALLEWAERT and Marie-Claude BOITEUX

25 October 2022, from 1:30pm – 2:30pm CET !! special time slot !!

Chaired by Saskia ORO, Thematic group on ToxiTEN – Severe cutaneous drug reactions

29 November 2022, from 1pm – 2pm CET 

To be confirmed

13 December 2022, from 1pm – 2pm CET 

Speaker: Eli SPRECHER, Tel Aviv Sourasky Medical Center Ichilov, Israël

Thematic group on Autoimmune bullous diseases

31 January 2023, from 1pm – 2pm CET 

«Developmental mosaicism in human skin disorders: a primer for the medical scientist»

Speaker: Marco Castori, U.O.C. Genetica Medica IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II, San Giovanni Rotondo

Chaired by Andrea DIOCIAUITI, Thematic group on Cutaneous Mosaic DisordersNevi & Nevoid Skin Disorders  and Complex Vascular Malformations and vascular Tumours

28 February 2023, from 1pm – 2pm CET – RARE DISEASES DAY! –

Chaired by Holm Schneider, Thematic group on Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders 

Previous webinars

24 May 2022 

«What’s New about the Ichthyoses»

Speaker: Amy PALLER, Ann & Robert H. Lurie Children’s Hospital of Chicago, Northwestern Memorial Hospital, USA

Chaired by Juliette MAZEEREUW, Thematic group on Ichthyosis & Palmoplantar Keratoderma

26 April 2022

«Therapies for dystrophic EB: how close are we from cure» – title to be confirmed

Speaker: Peter MARINKOVICH, Stanford Hospital and Clinics, USA 

Chaired by Christine BODEMER & Cristina HAS, Thematic group on Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier, Hailey-Hailey

31 March 2022

« The past, present and future of autoimmune blistering diseases »

Speaker: Dedee MURREL, St. George Hospital, UNSW Faculty of Medicine, Sydney, Australia 

Chaired by Branka MARINOVIC

Thematic group on Autoimmune Bullous diseases

22 February 2022

Opposite Sides of a Spectrum: Oral Wound Healing vs Chronic Non-healing Wounds
Presented by Maria Morasso, Laboratory of Skin Biology, NIAMS, Bethesda, USA

chaired by Smail Hadj-Rabia

Thematic group on Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders 

25 January 2022 

Reduced levels of prostaglandin I2 synthase: a distinctive feature of the cancer-free trichothiodystrophy presented by Donata Orioli

chaired by Fanny Morice-Picard

Thematic group on Cutaneous diseases related to DNA repair disorders

14 December 2021 

Pathways to address cutis laxa syndromes presented by Bert Callewaert

chaired by Raoul Engelbert

Thematic group on Mendelian connective tissue disorders

30 November 2021   

Adamantiades-Behcet’s disease – Andreas Altenburg

Chaired by Christos Zouboulis (Dessau, Germany)

26 October 2021  

Cytokines of the IL-1 family in severe cutaneous adverse drug reactions – Emmanuel Contassot 

Chaired by Saskia Oro (Paris, France)

28 September 2021 

Nevus pathophysiology, Melanoma risks and therapeutic expectations – Sarah Guégan

Chaired by Olivia Boccara (Paris, France)

6 July 2021  

Combined cell and gene therapy for Epidermolysis Bullosa – Michele De Luca

Chaired by Cristina Has (Freiburg, Germany) / Christine Bodemer (Paris, France) 

29 June 2021

Watch the record

Genetic discoveries in ichthyosis – Keith Choate 

Chaired by Juliette Mazereeuw-Hautier (Toulouse, France) 


On 19 February 2021, the ERN-Skin organised its first Scientific Day!
Please find the video recordings and pdf presentations of several sessions of the ERN-Skin Scientific Day.

This content is reserved for ERN-Skin members and healthcare professionals.

Click on the image to access