Emergency cards have all the essential information on the management of the patient with a rare skin disease. They are produced by the ERN-Skin experts, along with SKIN ePAG advocates. Rare skin diseases are unknown to most medical staff. In an emergency situation, it is vital to provide adequate care to avoid any complications. These emergency cards are the size of a business card and are written in the national language so that patients can carry them at all times.
We already have emergency cards for Ectodermal dysplasias, Epidermolysis bullosa, Severe cutaneous drug reactions, Ichthyosis and Plamoplantar Keratoderma and Cutaneous diseases related to DNA repair disorders!
So far, the ERN-Skin has developed emergency cards for Ectodermal dysplasias in 3 languages: English, French, German
So far, the ERN-Skin has developed emergency cards for Epidermolysis bullosa in 6 languages, with the participation of 11 reference centres:
If you are interested to create emergency cards for your patients, please contact coordination@ern-skin.eu