Emergency cards have all the essential information on the management of the patient with a rare skin disease. They are produced by the ERN-Skin experts, along with SKIN ePAG advocates. Rare skin diseases are unknown to most medical staff. In an emergency situation, it is vital to provide adequate care to avoid any complications. These emergency cards are the size of a business card and are written in the national language so that patients can carry them at all times.

We already have emergency cards for Ectodermal dysplasias, Epidermolysis bullosa, Severe cutaneous drug reactions, Ichthyosis and Plamoplantar Keratoderma and Cutaneous diseases related to DNA repair disorders!

So far, the ERN-Skin has developed emergency cards for Ectodermal dysplasias in 3 languages: English, French, German

English & French version

English & German version

So far, the ERN-Skin has developed emergency cards for Epidermolysis bullosa in 6 languages, with the participation of 11 reference centres:


Czech version – University Hospital Brno, EB Centrum CR

Dutch version – University Medical Centre Groningen

Dutch version – University Hospital Leuven

English version – Guy’s and St Thomas’ NHS Foundation Trust

English version – Birmingham Children’s Hospital NHS Foundation Trust

French version – University Hospital Leuven

German version – EBHaus Austria

German version – Universitätsklinikum Freiburg

Italian version – Pediatric hospital Bambino Gesù, Rome

Italian version – IRCCS IDI foundation Luigi Maria Monti, Rome

Italian version – Foundation IRCCS CA’Granda Ospedale Maggiore polyclinic, Milan

Italian version – AOU, Bologna

So far, the ERN-Skin has developed emergency cards for Severe cutaneous drug reactions in 2 languages: English and French

English version

French version

ERN-Skin has developed Emergency Cards for Ichthyosis in English and French

Short Format   (Engl)

Short Format – Over Heat version (Engl-Germ)

Long Version  (Engl)

Long Version  (Fr)

ERN-Skin has developed Emergency Card for Cutaneous diseases related to DNA repair disorders in English

Short Format   (Engl)

If you are interested to create emergency cards for your patients, please contact coordination@ern-skin.eu