Tutorials
Discover a collection of videos and tutorials about rare skin diseases which are recommended and validated by ERN-Skin thematic groups.
Currently available videos about Albinism and Xeroderma Pigmentosum, Epidermolysis bullosa, Hemangioma, Ichthyosis and Palmoplantar Keratoderma.
- Albinism and Xeroderma Pigmentosum:
- Learning about photoprotection for patients with albinism and xeroderma pigmentosum
- Epidermolysis bullosa:
- Epidermolysis bullosa and breastfeeding
- Hand mobility exercises for children suffering from epidermolysis bullosa
- Epidermolysis bullosa and oral hygiene
- Training on specific hand care for patients with epidermolysis bullosa
- Ectodermal dysplasia:
- How to cool my child down?
- Hemangioma
- Information on hemangioma for patients
- Information on hemangioma for professionals
- Ichthyosis and Palmoplantar Keratoderma:
- Animation based on a true story
Learning about photoprotection for patients with albinism and xeroderma pigmentosum
Produced by FIMARAD
Validated by The ERN-Skin Cutaneous Diseases Related to DNA Repair Disorders Thematic Group
Epidermolysis bullosa and breastfeeding
Produced by the Ospedale pediatrico Bambino Gesù, Rome, Italy
Validated by The ERN-Skin Epidermolysis Bullosa Thematic Group
Hand mobility exercises for children suffering from epidermolysis bullosa
Produced by FIMARAD
Validated by The ERN-Skin Epidermolysis Bullosa Thematic Group
Epidermolysis bullosa and oral hygiene
Produced by the Ospedale pediatrico Bambino Gesù, Rome, Italy
Validated by The ERN-Skin Epidermolysis Bullosa Thematic Group
Training on specific hand care for patients with epidermolysis bullosa
Produced by FIMARAD
Validated by The ERN-Skin Epidermolysis Bullosa Thematic Group
Ectodermal dysplasia: How to cool my child down?
English version
Spanish version
Produced by University Hospital Erlangen
Information on hemangioma for patients
Produced by Patient Organisation Hevas
Validated by The ERN-Skin MOSAIC Thematic Group
Information on hemangioma for professionals
Produced by Patient Organisation Hevas
Validated by The ERN-Skin MOSAIC Thematic Group
Ichthyosis and Palmoplantar Keratoderma (IPPK) – Animation based on a true story
Red Scaly Baby – Animation based on a true story