In order to efficiently tackle the multiple conditions falling within the scope of rare and complex skin conditions, the 56 centers of the ERN-Skin cooperate through 9 thematic groups, each coordinated by one or several chairs.
Although distinct, the fields of these groups often overlap, leading them to share their expertise on a daily basis, as knowledge about rare skin disorders progresses. The advances in the understanding of one group of these rare diseases are essential for the others.
Aiming to bring the best solutions and treatments to patients everywhere in Europe, the structure of the ERN-Skin is still evolving, developping subthematic and transversal groups coordinated by medical specialists and patient representatives, to enhance and facilitate the pooling of expertise through the network.