European Patient Advocacy Groups (ePAGs) bring together rare disease patient advocates who are actively involved in the work of the European Reference Networks. Each ePAG has a number of ‘ePAG advocates’, who represent their disease area in the ERN and the interests of the wider patient community.
To learn more about the involvement of patient organisations and patients in the European Reference Networks, click here.
The SKIN ePAG is the ePAG advocate group of the ERN-Skin. Each member is a representative of a patient organisation. Within the ERN-Skin, ePag advocates are present in each thematic and transversal group and play a key role in governance.