DEBRA France is an association under the French law of 1901 (non-profit), founded in 1985, bringing together patients suffering from epidermolysis bullosa (EB) and their families. Our association aims to finance research to cure the disease, but also to support the patients and their families.
EB is a group of rare genetic disorders characterised by fragility of the skin and mucous membranes, and mechanically induced blistering. EB comprises four main types – EB simplex (EBS), junctional EB (JEB), dystrophic EB (DEB), and Kindler EB (KEB), with more than 30 subtypes. EB is clinically heterogeneous including a broad spectrum of severity.
Angélique Sauvestre Varela
Skin ePAG Advocate
Associated thematic group