Composed of 130 institutions including all 24 ERNs – from 35 countries

Launched in January 2019 for 5 years

Main goal:

To create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation on Rare Diseases, ensuring rapid translation of research results into clinical applications and uptake in healthcare for the benefit of patients.

EJP RD two major objectives:

  1. To improve the integration, the efficacy, the production and the social impact of research on RD through the development, demonstration and promotion of Europe/world-wide sharing of research and clinical data, materials, processes, knowledge and know-how
  2. To implement and further develop an efficient model of financial support (specific adapted calls) for all types of research on RD (fundamental, clinical, epidemiological, social, economic, health service) coupled with accelerated exploitation of research results for benefit of patients

The H2020 proposal : “European Rare disease research Coordination and support Action” (ERICA) submitted on behalf of the ERN Research Working Group, has received a positive evaluation and is invited to the grant preparation phase!

This project is about building on the strength of the individual ERNs and create a platform that integrates research and innovation capacity.

All 24 ERNs will be represented as official beneficiary by their coordinator institutes. In addition, several other important stakeholders will be involved as official beneficiary.

The aim of ERICA is to establish a structural framework in support of the research activities of the ERNs. ERICA will promote inter-ERN research activities and establish firm collaborative ties with existing European and international infrastructures and consortia involved in rare disease research and innovation. The formation of this coordinated support structure will stimulate clinical research activities and leverage the cost efficiency of rare disease research in Europe and beyond, contributing to earlier diagnosis and better management for patients with rare diseases and conditions.

ERICA is coordinated by Prof. Alberto Pereira (ENDO-ERN coordinator), co-chair of the ERN Research Working Group. We are thankful for the already constructive collaboration and we’re looking forward to develop this project successfully together !