ERN-Skin Calendar

The ERN-Skin Calendar brings together all upcoming activities, including; meetings, webinars, thematic group meetings, Skin ePAG meetings, CPMS meetings, and other events.

Use the available filters to browse events by category and find the activities most relevant to you. Click on any event to view further details, including the agenda, registration information, and related resources.

The calendar includes both publicly accessible events and activities reserved for ERN-Skin members. For more information about event access and registration, please refer to the Frequently Asked Questions below.

Events in June 2026

Monday Tuesday Wednesday Thursday Friday Saturday Sunday
1 June 2026
2 June 2026
3 June 2026(1 event category)


3 June 2026 4 June 2026

The next ECRD will be held on  3 & 4 June 2026 in Prague  and online and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. 

By bringing together people living with rare diseases and patient advocates alongside policymakers, healthcare industry representatives, clinicians, regulators, and Member State officials, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families.

Thanks to its hybrid format, the conference will provide an unparalleled platform for connection and collaboration, enabling participants across the rare disease community to  exchange knowledge, share experiences, and build partnerships.

4 June 2026(1 event category)


3 June 2026 4 June 2026

The next ECRD will be held on  3 & 4 June 2026 in Prague  and online and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. 

By bringing together people living with rare diseases and patient advocates alongside policymakers, healthcare industry representatives, clinicians, regulators, and Member State officials, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families.

Thanks to its hybrid format, the conference will provide an unparalleled platform for connection and collaboration, enabling participants across the rare disease community to  exchange knowledge, share experiences, and build partnerships.

5 June 2026
6 June 2026
7 June 2026
8 June 2026
9 June 2026
10 June 2026(1 event category)
11 June 2026
12 June 2026
13 June 2026(1 event category)

13 June 2026

International Albinism Awareness Day is celebrated annually on June 13th to celebrate the human rights of persons with albinism worldwide.

14 June 2026
15 June 2026
16 June 2026(2 event categories)


16 June 2026

CPMS meeting: Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease (EB)


16 June 2026

Thematic group meeting: Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease (EB)

17 June 2026
18 June 2026(2 event categories)


18 June 2026

CPMS meeting: Cutaneous diseases related to DNA repair disorders and photosensitivity (DNA+)


18 June 2026

Thematic group meeting: Cutaneous diseases related to DNA repair disorders and photosensitivity (DNA+)


18 June 2026

CPMS Meeting: AutoImmune Bullous Diseases (AIBD) + Severe Cutaneous Drug Reactions – Toxic Bullous Diseases (ToxiTEN)


18 June 2026

Thematic group meeting: AutoImmune Bullous Diseases (AIBD) + Severe Cutaneous Drug Reactions – Toxic Bullous Diseases (ToxiTEN)

19 June 2026
20 June 2026
21 June 2026
22 June 2026
23 June 2026
24 June 2026
25 June 2026
26 June 2026(2 event categories)


26 June 2026

CPMS Meeting: Cutaneous Mosaic Disorders: Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors (Mosaic)


26 June 2026

Thematic group meeting: Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors (Mosaic)

27 June 2026
28 June 2026
29 June 2026
30 June 2026(1 event category)


30 June 2026

Registration will open soon!

1 July 2026(1 event category)

1 July 2026 3 July 2026

The ERN-Skin and the René Touraine Foundation are organizing the 3rd World Congress on Rare Skin Diseases.

The main goal is to bring together the medical and paramedical teams, scientists, patient representatives, policy makers, as well as industrial stakeholders. In order to improve patient care, develop collaboration and increase research! We cannot wait to see you there!

10 rue de la Chancellerie
Versailles 78000
France
ℹ️ For more information access the Congress website here
2 July 2026(1 event category)

1 July 2026 3 July 2026

The ERN-Skin and the René Touraine Foundation are organizing the 3rd World Congress on Rare Skin Diseases.

The main goal is to bring together the medical and paramedical teams, scientists, patient representatives, policy makers, as well as industrial stakeholders. In order to improve patient care, develop collaboration and increase research! We cannot wait to see you there!

10 rue de la Chancellerie
Versailles 78000
France
ℹ️ For more information access the Congress website here
3 July 2026(1 event category)

1 July 2026 3 July 2026

The ERN-Skin and the René Touraine Foundation are organizing the 3rd World Congress on Rare Skin Diseases.

The main goal is to bring together the medical and paramedical teams, scientists, patient representatives, policy makers, as well as industrial stakeholders. In order to improve patient care, develop collaboration and increase research! We cannot wait to see you there!

10 rue de la Chancellerie
Versailles 78000
France
ℹ️ For more information access the Congress website here
4 July 2026
5 July 2026
Frequently Asked Questions

Who can access the events in the calendar?
The calendar includes both publicly accessible events and internal ERN-Skin events. Public access events are open for registration, while internal events are reserved for ERN-Skin members only.

Which events are open for public registration?
ERN-Skin webinars, and other selected events are open for public registration, depending on the specific event.

Which events are for ERN-Skin members only?
Thematic group meetings, Skin ePAG meetings, and CPMS meetings are reserved exclusively for ERN-Skin members.

How do ERN-Skin members receive event information?
ERN-Skin members are directly informed about all events.

How can I register for an event?
If an event is open for public registration, the registration link and instructions are provided in the event details.