Documents for patients

Here find patient documents for each area of expertise of the thematic groups

These documents are intended for patients, patient organisations and healthcare professionals. They are developed by the thematic groups, thanks to a great collaboration between the ERN-Skin experts and the SKIN ePAG advocates.

Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN

Autoimmune Bullous diseases

Cutaneous diseases related do DNA repair disorders and Photosensitivity

Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors

Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders

Ichthyosis and Palmoplantar Keratoderma

Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease

Mendelian connective tissue disorders

Severe cutaneous drug reactions (ToxiTEN)