Marie Guillou2025-09-12T10:27:12+02:00
Short and didactic clinical cases Unusual presentation of capillary Malformation arteriovenous malformations syndrome Presented by Dr Andrea Diociaiuti [...]
Training AIBD in children V.Kucinskiene
Marie Guillou2025-07-16T16:48:45+02:00Training AIBD in children V.Kucinskiene
Agenda for Auto-Immune Blistering Disease Workshops
Marie Guillou2025-07-17T11:06:23+02:00Agenda for Auto-Immune Blistering Disease Workshops
DEBRA Research Grant Opportunity
Marie Guillou2025-06-26T11:03:04+02:00DEBRA Research Grant Opportunity DEBRA Research gGmbH, a global non-profit organization dedicated to advancing research and drug development for those affected by Epidermolysis bullosa (EB), [...]
ERDERA: Networking Support Scheme (NSS)
Marie Guillou2025-07-17T15:49:14+02:00ERDERA: Networking Support Scheme (NSS) Next collection date: from 7 October 2025 ERDERA has launched the Networking Support Scheme, a funding initiative aimed at supporting [...]
Learning about photoprotection for patients with albinism and xeroderma pigmentosum
Marie Guillou2025-03-31T12:06:31+02:00Learning about photoprotection for patients with albinism and xeroderma pigmentosum Produced by FIMARAD Validated by The ERN-Skin Cutaneous Diseases Related to DNA Repair [...]
Information on hemangioma for professionals
Marie Guillou2025-03-31T11:38:51+02:00Information on hemangioma for professionals Produced by Patient Organisation Hevas Validated by The ERN-Skin MOSAIC Thematic Group
Information on hemangioma for patients
Marie Guillou2025-03-31T11:31:48+02:00Information on hemangioma for patients Produced by Patient Organisation Hevas Validated by The ERN-Skin MOSAIC Thematic Group
Tips for the daily life of patients with an autoimmune bullous disease – French version
Marie Guillou2025-03-04T11:43:27+01:00Tips for the daily life of patients with an autoimmune bullous disease - French version