Vascern Do’s and Don’ts factsheets for rare vascular disease patients facing frequent situations

Marie Guillou2024-04-19T11:38:23+02:00

Vascern Do’s and Don’ts factsheets for rare vascular disease patients facing frequent situations – Severe/Rare Infantile Hemagiomas (IH)

Vascern Do’s and Don’ts factsheets for rare vascular disease patients facing frequent situationsMarie Guillou2024-04-19T11:38:23+02:00

Leaflet for Patients

Marie Guillou2025-03-31T11:52:33+02:00

Leaflet for Patients

Leaflet for PatientsMarie Guillou2025-03-31T11:52:33+02:00

FAQ for mosaicism

Marie Guillou2025-03-31T11:52:49+02:00

FAQ for mosaicism

FAQ for mosaicismMarie Guillou2025-03-31T11:52:49+02:00

CMTC-OVM information material for patients, their families and healthcare providers

Marie Guillou2024-03-29T10:08:48+01:00

CMTC-OVM provides a variety of information material for patients, their families and healthcare providers

CMTC-OVM information material for patients, their families and healthcare providersMarie Guillou2024-03-29T10:08:48+01:00

Quizz about IPPK (French)

Marie Guillou2024-03-28T15:16:13+01:00

Quizz (French) - IPPK

Quizz about IPPK (French)Marie Guillou2024-03-28T15:16:13+01:00

Tools list 24/12/2019

Marie Guillou2024-03-28T14:54:52+01:00

Tools list - 24122019

Tools list 24/12/2019Marie Guillou2024-03-28T14:54:52+01:00

IPPK Deep Phenotyping KS

Marie Guillou2024-03-28T14:52:03+01:00

IPPK_DeepPhenotyping_KS_2019.02

IPPK Deep Phenotyping KSMarie Guillou2024-03-28T14:52:03+01:00

Ichthyosis Guidelines for Patients

Marie Guillou2024-04-05T16:04:48+02:00

Ichthyosis Guidelines for Patients

Ichthyosis Guidelines for PatientsMarie Guillou2024-04-05T16:04:48+02:00

Emergency card IPPK – French (Long version)

Marie Guillou2024-03-28T11:58:31+01:00

Emergency card IPPK - French (Long version)

Emergency card IPPK – French (Long version)Marie Guillou2024-03-28T11:58:31+01:00

Emergency card IPPK – English (Long version)

Marie Guillou2024-03-28T11:57:03+01:00

Emergency card IPPK - English (Long version)

Emergency card IPPK – English (Long version)Marie Guillou2024-03-28T11:57:03+01:00