Agenda for Auto-Immune Blistering Disease Workshops
Marie Guillou2025-07-17T11:06:23+02:00Agenda for Auto-Immune Blistering Disease Workshops
DEBRA Research Grant Opportunity
Marie Guillou2025-06-26T11:03:04+02:00DEBRA Research Grant Opportunity DEBRA Research gGmbH, a global non-profit organization dedicated to advancing research and drug development for those affected by Epidermolysis bullosa (EB), [...]
European Rare Diseases Reseach Alliance Calls
Marie Guillou2026-02-02T15:30:24+01:00ERDERA Call for funding In this page you can find the latest information about ERDERA’s funding. Their research strategy is built upon a diversity of [...]
Learning about photoprotection for patients with albinism and xeroderma pigmentosum
Marie Guillou2025-03-31T12:06:31+02:00Learning about photoprotection for patients with albinism and xeroderma pigmentosum Produced by FIMARAD Validated by The ERN-Skin Cutaneous Diseases Related to DNA Repair [...]
Information on hemangioma for professionals
Marie Guillou2025-03-31T11:38:51+02:00Information on hemangioma for professionals Produced by Patient Organisation Hevas Validated by The ERN-Skin MOSAIC Thematic Group
Information on hemangioma for patients
Marie Guillou2025-03-31T11:31:48+02:00Information on hemangioma for patients Produced by Patient Organisation Hevas Validated by The ERN-Skin MOSAIC Thematic Group
Tips for the daily life of patients with an autoimmune bullous disease – French version
Marie Guillou2025-03-04T11:43:27+01:00Tips for the daily life of patients with an autoimmune bullous disease - French version
Tips for a salt-free and low sugar diet during general corticosteroid therapy – French version
Marie Guillou2025-03-04T11:40:54+01:00Tips for a salt-free and low sugar diet during general corticosteroid therapy - French version
Information sheet for patients affected by pemphigoid gestationis – French version
Marie Guillou2025-03-04T11:32:31+01:00Information sheet for patients affected by pemphigoid gestationis - French version