Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders Patient documents Everybody's Different: How genes affect what we look like? - Danish version Recommended [...]
Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease Patient documents Debra international - EB patient guides and infographics [...]
Cutaneous diseases related to DNA repair disorders Patient documents Patient Pathway - Xeroderma Pigmentosum Elaborated by the ERN-Skin 2020
Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN Patient documents European patient organisations Elaborated by the ERN-Skin 2020 [...]
Autoimmune Bullous diseases Patient documents Patient jouney on bullous pemphigoid Elaborated by the ERN-Skin 2024 AIBD VADEMECUM english Elaborated by the [...]
Severe cutaneous drug reactions (ToxiTEN) Clinical OutCome Measures
Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors Clinical OutCome Measures [...]
Mendelian connective tissue disorders Clinical OutCome Measures
Ichthyosis and Palmoplantar Keratoderma Clinical OutCome Measures
Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders Clinical OutCome Measures