Patient documents – MCTD
Marie Guillou2026-02-24T16:15:22+01:00Mendelian connective tissue disorders Patient documents No document yet
About Marie Guillou
This author has not yet filled in any details.So far Marie Guillou has created 394 blog entries.
Patient documents – IPPK
Marie Guillou2026-02-24T16:14:42+01:00Ichthyosis and Palmoplantar Keratoderma Patient documents Ichthyosis Guidelines for Patients Red Scaly Baby - Animation based on a true [...]
Patient documents – ED
Marie Guillou2026-02-24T16:14:57+01:00Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders Patient documents Everybody's Different: How genes affect what we look like? - Danish version Recommended [...]
Patient documents – EB
Marie Guillou2026-02-24T16:14:21+01:00Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease Patient documents Debra international - EB patient guides and infographics [...]
Patient documents – DNA
Marie Guillou2026-02-24T16:13:54+01:00Cutaneous diseases related to DNA repair disorders Patient documents Patient Pathway - Xeroderma Pigmentosum Elaborated by the ERN-Skin 2020
Patient documents – ALLOCATE
Marie Guillou2026-02-24T16:13:21+01:00Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN Patient documents European patient organisations Elaborated by the ERN-Skin 2020 [...]
Patient documents – AIBD
Marie Guillou2026-02-24T16:11:28+01:00Autoimmune Bullous diseases Patient documents Patient jouney on bullous pemphigoid Elaborated by the ERN-Skin 2024 AIBD VADEMECUM english Elaborated by the [...]
Clinical OutCome Measures – ToxiTEN
Marie Guillou2020-11-09T15:29:15+01:00Severe cutaneous drug reactions (ToxiTEN) Clinical OutCome Measures
Clinical OutCome Measures – Mosaic
Marie Guillou2020-11-09T15:29:26+01:00Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors Clinical OutCome Measures [...]
Clinical OutCome Measures – MCTD
Marie Guillou2020-11-09T15:29:38+01:00Mendelian connective tissue disorders Clinical OutCome Measures