Patient AIBD VADEMECUM english
Marie Guillou2024-04-19T13:07:04+02:00Patient AIBD VADEMECUM english
Patient AIBD VADEMECUM english
Ichthyosis Guidelines for Patients
Care4Netherton is the project to improve the care for people with netherton syndrome, by defining outcome measures to evaluate care and therapy
Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily life
Red Scaly Baby – Animation based on a true story
SJS/TEN Patient Information Leaflet
Debra international – EB patient guides and infographics
