Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily life

Marie Guillou2024-04-19T11:57:32+02:00

Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily life

Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily lifeMarie Guillou2024-04-19T11:57:32+02:00

Red Scaly Baby – Animation based on a true story

Marie Guillou2024-04-19T11:59:01+02:00

Red Scaly Baby – Animation based on a true story

Red Scaly Baby – Animation based on a true storyMarie Guillou2024-04-19T11:59:01+02:00

Leaflet for Patients

Marie Guillou2024-04-19T10:49:34+02:00

Leaflet for Patients

Leaflet for PatientsMarie Guillou2024-04-19T10:49:34+02:00

FAQ for mosaicism

Marie Guillou2024-04-19T10:47:05+02:00

FAQs for mosaicism

FAQ for mosaicismMarie Guillou2024-04-19T10:47:05+02:00

CMTC-OVM Information folders

Marie Guillou2024-04-19T10:44:53+02:00

CMTC-OVM Information letters

CMTC-OVM Information foldersMarie Guillou2024-04-19T10:44:53+02:00

SJS/TEN Patient Information Leaflet

Marie Guillou2024-04-19T10:30:58+02:00

SJS/TEN Patient Information Leaflet

SJS/TEN Patient Information LeafletMarie Guillou2024-04-19T10:30:58+02:00

Debra international – EB patient guides and infographics

Marie Guillou2024-04-05T16:00:07+02:00

Debra international – EB patient guides and infographics

Debra international – EB patient guides and infographicsMarie Guillou2024-04-05T16:00:07+02:00

Everybody’s different: How genes affect what we look like

Marie Guillou2024-04-05T15:51:47+02:00

Everybody's different: How genes affect what we look like

Everybody’s different: How genes affect what we look likeMarie Guillou2024-04-05T15:51:47+02:00

Patient Pathway – Xeroderma Pigmentosum

Marie Guillou2024-04-05T15:47:13+02:00

Patient Pathway – Xeroderma Pigmentosum

Patient Pathway – Xeroderma PigmentosumMarie Guillou2024-04-05T15:47:13+02:00

European patient organisations

Marie Guillou2024-04-05T15:44:46+02:00

European patient organisations

European patient organisationsMarie Guillou2024-04-05T15:44:46+02:00