The ERN-Skin representative alongside the other 23 European Reference Networks representatives have written an open letter to the EU institutions and EU Member States’ governments to stand by the European Reference Networks and to uphold their commitment to enable long-lasting impact in people’s lives and, fundamentally, give all people living with a rare or complex condition in Europe the same opportunities to access timely and adequate specialised healthcare.

For further information see the open letter below or access the pdf version.