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Organiser

ERN Skin Coordination

Venue

Hôpital Necker – Enfants Malades

149 Rue de Sèvres, 75015 Paris

Welcome to the 2019 ERN Skin Annual Board Metting

Dear friend and colleagues, we are very happy to welcome you in Paris for our 2019 Board Meeting, and we hope that many of you will be able to attend.
The past year has really been fruitful for the ERN-Skin, and we have made great progress in how we share information and improve patient care. Transdisciplinarity is and will remain a fundamental point in our action, and a large part of this meeting will focus on this fundamental issue.
The ERN-Skin will soon welcome new members. This will provide an opportunity to reach new patients more effectively and to integrate new skills. It will also lead us to use more efficiently the exchange tools provided by the ERNs, to clarify our processes, and to ensure easy integration with new healthcare providers.
On the first day, thematic groups sessions will be an opportunity to discuss concrete issues that we all face in our daily practice, and to detail new methods that enrich our response to different pathologies.
The basis of our mission also consist in the widest possible dissemination of clinical and therapeutic information. Thus, the last part of our meeting will be open to all health professionals, including medical students, beyond the ERN-Skin Network.
My whole team is looking forward to welcoming you for these two days that will show the dynamism and commitment of our ERN, and will allow us to move forward together.

See you soon.

Christine Bodemer

ERN-Skin coordinator

Program

These sessions are restricted to
ERN Skin members,
patients advocates
and invited guests

These sessions are open to
members of other ERNs

These sessions are open to
all health professionnals, medical students and patients advocates

8:30 am
9:00 am
9:30 am
10:00 am
10:30 am
11:00 am
11:30 am
12:00 pm
12:30 pm
1:00 pm
1:30 pm
2:00 pm
2:30 pm
3:00 pm
3:30 pm
4:00 pm
4:30 pm
5:00 pm
5:30 pm
6:00 pm
6:30 pm
7:00 pm
7:30 pm
8:00 pm
8:30 pm
4th of October
4th of October
Registration

Information & Focus on clinical research
9:00 am - 10:00 am

e-PAG

Survey on patient satisfaction - clinical outcomes - how to improve patient satisfaction

Break

Clinical Decision Tools - Multidisciplinary approach - Meeting with invited experts
11:00 am - 12:30 pm

Participants: ERN-Skin members + invited experts such as stomatologists + overlapping ERNs representatives such as ophthalmologists (ERN-Eye), radiologists (VASCERN) Aim: to define common clinical decisions tools (such as clinical practice guidelines, patient pathways)

Lunch + Poster Session
12:30 pm - 1:30 pm
Each thematic and transversal group presents a poster

Each thematic and transversal group presents a poster

2 didactic/complex cases in ophthalmology & dermatology
1:30 pm - 2:15 pm

This session could cover the following disorders: Epidermolysis Bullosa, Ichthyosis & Palmoplantar Keratoderma, Autoimmune bullous diseases, Severe cutaneous drug reactions, Incontinentia Pigmenti The dermatologist would introduce the disease (characteristics in 2 slides) The ophthalmologist would explain the eye characteristics & management.

2 didactic/complex cases in stomatology & dermatology 
2:15 pm - 3:00 pm

This session could cover the following disorders: Ectodermal Dysplasias, Epidermolysis Bullosa, Autoimmune bullous diseases, Severe cutaneous drug reactions, Cutaneous Mosaic Disorders The dermatologist would introduce the disease (characteristics in 2 slides) The stomatologist would explain the oral/dental/maxillofacial characteristics & management

2 didactic/complex cases in radiology & dermatology
3:00 pm - 3:45 pm

This session could cover the following disorders: Cutaneous Mosaic Disorders, Hidradenitis suppurativa The dermatologist would introduce  the disease (characteristics in 2 slides) The radiologist would explain the radiology characteristics & management.

Registration

Accommodation

Standard single room : 141€/night
This rate includes :

  • Breakfast

Tourist tax : 2.88€/day
Hotel booking by email, phone or on the hotel website with the code « ERN SKIN » until the event.

Website : https://www.hotel-madrigal.com/fr/
Tel : + 33 (0)1 47 34 70 47
Email : contact@hotel-madrigal.com

Standard single room : 122€/night
Standard single room with a view : 132€/night
30€ additionnal fee for double occupancy
This rate includes :

  • Breakfast
  • Tourist tax

Hotel booking by email or phone until the event. Please make sure you tell the reception that you attend a Necker Hospital event.

Website : https://aberotelparishotel.com/fr/
Tel : + 33 (0)1 40 61 70 50
Email : aberotel@wanadoo.fr

Standard single room : 195€/night
This rate includes :

  • Breakfast

Tourist tax : 1.88€/day
Hotel booking only by email with the code ERN SKIN from the 02/06/2019 to the 02/07/2019

Website : http://vaneausaintgermain.com/
Tel : + 33 (0)1 45 48 73 11
Email : hotel@vaneausaintgermain.com

Standard single room : 169€/night
Premium single room : 189€/night
This rate includes :

  • Breakfast

Tourist tax : 1.88€/day
Hotel booking by email or phone with the code « CSO NECKER » until the 30th of june.

You can also book this hotel on the website : https://elegancia-hotels.com/fr/ with the code « CSONECKER ».

Website : https://hotel-laparizienne.com/
Tel : + 33 (0)1 45 48 75 64
Email : contact@hotel-laparizienne.com

Standard single room : 199€/night
Premium single room : 229€/night
This rate includes :

  • Breakfast

Tourist tax : 1.88€/day
Hotel booking by email or phone with the code « CSONECKER » until the 30th of june.

You can also book this hotel on the website : https://elegancia-hotels.com/fr/ with the code « CSONECKER ».

Website : http://www.louison-hotel.com/
Tel : + 33 (0)1 53 63 25 50
Email : welcome@louisonhotel.com

Standard single room : 199€/night
This rate includes :

  • Breakfast

Tourist tax : 2.88€/day
Hotel booking by email or phone with the code « CSO NECKER » until the 30th of june.

You can also book this hotel on the website : https://elegancia-hotels.com/fr/ with the code « CSONECKER ».

Website : https://bobhotelparis.com/
Tel : + 33 (0)1 40 43 02 33
Email : contact@bobhotelparis.com

Standard single room : 209€/night
This rate includes :

  • Breakfast

Tourist tax : 2.88€/day
Hotel booking by email or phone with the code « CSO NECKER » until the 30th of june.

You can also book this hotel on the website : https://elegancia-hotels.com/fr/ with the code « CSONECKER ».

Website : https://legendhotelparis.com/
Tel : + 33 (0)1 45 48 97 38
Email : contact@legendhotelparis.com