Guidelines for each area of expertise of the thematic groups
The thematic groups, as well as specialists, paramedical staff and patient groups work together in two complementary actions:
- The assessment of the available guidelines at the local and national level. Those guidelines are used and highly recommended by ERN-Skin experts.
- The development of ERN-Skin clinical practice guidelines. These guidelines follow the standard evidence-based procedure by involving multidisciplinary group of experts, analyzing literature and taking into account experience of experts, including SKIN ePAG advocates. They are updated every 5 years or before in case of therapeutic innovation.
Legend
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AIBD
Autoimmune Bullous Diseases
S2k guidelines on diagnosis and treatment of linear IgA dermatosis initiated by the European Academy of Dermatology and Venereology
S2k guidelines on the management of paraneoplastic pemphigus/paraneoplastic autoimmune multiorgan syndrome initiated by the European Academy of Dermatology and Venereology (EADV)
European Guidelines (S3) on diagnosis and management of mucous membrane pemphigoid, initiated by the EADV – Part II.
Mucous Membrane Pemphigoid guidelines – guidelines (S3) on diagnosis and management of mucous membrane pemphigoid, initiated by EADV – Part I.
Dermatitis herpetiformis guidelines – S2k guidelines (consensus statement) for diagnosis and therapy of dermatitis herpetiformis initiated by EADV
Diagnosis and management of pemphigus: Recommendations of an international panel of experts
- Diagnosis and management of pemphigus
Validity and reliability of the Chronic Oral Mucosal Diseases Questionnaire in a UK population
Management of bullous pemphigoid: the European Dermatology Forum consensus in collaboration with the EADV
Pemphigus S2 Guideline for diagnosis and treatment guided by the European Dermatology Forum in cooperation with the EADV
ALLOCATE
Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN
S2k guideline for the treatment of hidradenitis suppurativa/acne inversa
Hidradenitis suppurativa in a prepubertal case series: a call for specific guidelines
Hidradenitis suppurativa/acne inversa: a practical framework for treatment optimization – systematic review and recommendations from the HS ALLIANCE working group
Development and validation of the International Hidradenitis Suppurativa Severity Score System (IHS4)
European S1 guideline for the treatment of hidradenitis suppurativa/acne inversa
DNA
Cutaneous Diseases related to DNA repair Disorders and photosensitivity
EB
Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease
Management of children with Epidermolysis Bullosa: Therapeutic education for parents and carers – in ITALIAN
Management of children with Epidermolysis Bullosa: Therapeutic education for parents and carers – in ENGLISH
Provision of Palliative and End-of-Life Care
Consensus guidelines for diagnosis and management of anemia in epidermolysis bullosa
- Preventative nutritional care guideline
Emergency management in epidermolysis bullosa: consensus clinical recommendations from the European reference network for rare skin diseases
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines
- Occupational therapy for epidermolysis bullosa: clinical practice guidelines
- Clinical practice guidelines for laboratory diagnosis of epidermolysis bullosa
Foot care in epidermolysis bullosa: evidence-based guideline
ED
Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders
A Causal Treatment for X-Linked Hypohidrotic Ectodermal Dysplasia: Long-Term Results of Short-Term Perinatal Ectodysplasin A1 Replacement
Protocol for the Phase 2 EDELIFE Trial Investigating the Efficacy and Safety of Intra-Amniotic ER004 Administration to Male Subjects with X-Linked Hypohidrotic Ectodermal Dysplasia
French guidelines for Xeroderma Pigmentosum
IPPK
Ichthyosis and Palmoplantar Keratoderma
Neonatal erythroderma: Step wise approach
Management of congenital ichthyoses: European guidelines of care – Part I.
Management of congenital ichthyoses: European guidelines of care – Part II.
Ichthyoses – Part 2: Congenital ichthyoses
Ichthyoses – Part 1: Differential diagnosis of vulgar ichthyoses and therapeutic options
MCTD
Mendelian Connective Tissue Disorders
Mosaic
Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors
ToxiTEN
Severe Cutaneous Drug Reactions – Toxic Bullous Diseases
Supportive care in the acute phase of Stevens-Johnson syndrome and toxic epidermal necrolysis: an international, multidisciplinary Delphi-based consensus
Management of ocular involvement in the acute phase of Stevens-Johnson syndrome and toxic epidermal necrolysis: french national audit of practices, literature review,and consensus agreement
Supportive Care Guidelines for the Management of SJS/TEN in Adults
British Association of Dermatologists guidelines for the management of Stevens-Johnson syndrome/toxic epidermal necrolysis in children and young people
Epidermal necrolysis French national diagnosis and care protocol (PNDS;protocole national de diagnostic et de soins)
Severe cutaneous adverse reactions to drugs
U.K. guidelines for the management of Stevens-Johnson syndrome/toxic epidermal necrolysis in adults
Epidermal necrolysis – Stevens-Johnson syndrome and Toxic Epidermal Necrolysis (Lyell syndrome) – Form for Emergency Department Use