Guidelines for each area of expertise of the thematic groups
The thematic groups, as well as specialists, paramedical staff and patient groups work together in two complementary actions:
- The assessment of the available guidelines at the local and national level. Those guidelines are used and highly recommended by ERN-Skin experts.
- The development of ERN-Skin clinical practice guidelines. These guidelines follow the standard evidence-based procedure by involving multidisciplinary group of experts, analyzing literature and taking into account experience of experts, including SKIN ePAG advocates. They are updated every 5 years or before in case of therapeutic innovation.
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AIBD
Autoimmune Bullous Diseases
S2k guidelines on diagnosis and treatment of linear IgA dermatosis initiated by the European Academy of Dermatology and Venereology- S2k guidelines on the management of paraneoplastic pemphigus/paraneoplastic autoimmune multiorgan syndrome initiated by the European Academy of Dermatology and Venereology (EADV)
European Guidelines (S3) on diagnosis and management of mucous membrane pemphigoid, initiated by the EADV – Part II.- Mucous Membrane Pemphigoid guidelines – guidelines (S3) on diagnosis and management of mucous membrane pemphigoid, initiated by EADV – Part I.
- Dermatitis herpetiformis guidelines – S2k guidelines (consensus statement) for diagnosis and therapy of dermatitis herpetiformis initiated by EADV
- Diagnosis and management of pemphigus: Recommendations of an international panel of experts
- Diagnosis and management of pemphigus
- Validity and reliability of the Chronic Oral Mucosal Diseases Questionnaire in a UK population
- Management of bullous pemphigoid: the European Dermatology Forum consensus in collaboration with the EADV
- Pemphigus S2 Guideline for diagnosis and treatment guided by the European Dermatology Forum in cooperation with the EADV
ALLOCATE
Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN
- S2k guideline for the treatment of hidradenitis suppurativa/acne inversa
- Hidradenitis suppurativa in a prepubertal case series: a call for specific guidelines
- Hidradenitis suppurativa/acne inversa: a practical framework for treatment optimization – systematic review and recommendations from the HS ALLIANCE working group
- Development and validation of the International Hidradenitis Suppurativa Severity Score System (IHS4)
- European S1 guideline for the treatment of hidradenitis suppurativa/acne inversa
DNA
Cutaneous Diseases related to DNA repair Disorders and photosensitivity
EB
Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease
- Update of Inherited Epidermolysis Bullosa Guidelines (work in progress)
- Management of children with Epidermolysis Bullosa: Therapeutic education for parents and carers – in ITALIAN
- Management of children with Epidermolysis Bullosa: Therapeutic education for parents and carers – in ENGLISH
- Provision of Palliative and End-of-Life Care
- Consensus guidelines for diagnosis and management of anemia in epidermolysis bullosa
- Preventative nutritional care guideline
- Emergency management in epidermolysis bullosa: consensus clinical recommendations from the European reference network for rare skin diseases
- Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines
- Occupational therapy for epidermolysis bullosa: clinical practice guidelines
- Clinical practice guidelines for laboratory diagnosis of epidermolysis bullosa
- Foot care in epidermolysis bullosa: evidence-based guideline
ED
Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders
- A Causal Treatment for X-Linked Hypohidrotic Ectodermal Dysplasia: Long-Term Results of Short-Term Perinatal Ectodysplasin A1 Replacement
- Protocol for the Phase 2 EDELIFE Trial Investigating the Efficacy and Safety of Intra-Amniotic ER004 Administration to Male Subjects with X-Linked Hypohidrotic Ectodermal Dysplasia
- French guidelines for Xeroderma Pigmentosum
IPPK
Ichthyosis and Palmoplantar Keratoderma
- Neonatal erythroderma: Step wise approach
- Management of congenital ichthyoses: European guidelines of care – Part I.
- Management of congenital ichthyoses: European guidelines of care – Part II.
- Ichthyoses – Part 2: Congenital ichthyoses
- Ichthyoses – Part 1: Differential diagnosis of vulgar ichthyoses and therapeutic options
MCTD
Mendelian Connective Tissue Disorders
Mosaic
Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors
ToxiTEN
Severe Cutaneous Drug Reactions – Toxic Bullous Diseases
Supportive care in the acute phase of Stevens-Johnson syndrome and toxic epidermal necrolysis: an international, multidisciplinary Delphi-based consensus- Management of ocular involvement in the acute phase of Stevens-Johnson syndrome and toxic epidermal necrolysis: french national audit of practices, literature review,and consensus agreement
- Supportive Care Guidelines for the Management of SJS/TEN in Adults
- British Association of Dermatologists guidelines for the management of Stevens-Johnson syndrome/toxic epidermal necrolysis in children and young people
- Epidermal necrolysis French national diagnosis and care protocol (PNDS;protocole national de diagnostic et de soins)
- Severe cutaneous adverse reactions to drugs
- U.K. guidelines for the management of Stevens-Johnson syndrome/toxic epidermal necrolysis in adults
- Epidermal necrolysis – Stevens-Johnson syndrome and Toxic Epidermal Necrolysis (Lyell syndrome) – Form for Emergency Department Use