Ichthyosis Guidelines for Patients
Marie Guillou2024-04-19T12:35:12+02:00Ichthyosis Guidelines for Patients
About Marie Guillou
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Care4Netherton is the project to improve the care for people with netherton syndrome, by defining outcome measures to evaluate care and therapy
Marie Guillou2024-04-19T12:02:19+02:00Care4Netherton is the project to improve the care for people with netherton syndrome, by defining outcome measures to evaluate care and therapy
Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily life
Marie Guillou2024-04-19T11:57:32+02:00Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily life
Red Scaly Baby – Animation based on a true story
Marie Guillou2024-04-19T11:59:01+02:00Red Scaly Baby – Animation based on a true story
SJS/TEN Patient Information Leaflet
Marie Guillou2024-04-19T10:30:58+02:00SJS/TEN Patient Information Leaflet
Debra international – EB patient guides and infographics
Marie Guillou2024-04-05T16:00:07+02:00Debra international – EB patient guides and infographics
Everybody’s different: How genes affect what we look like
Marie Guillou2024-04-05T15:51:47+02:00Everybody's different: How genes affect what we look like