Patient Pathway – Xeroderma Pigmentosum
Marie Guillou2024-04-05T15:47:13+02:00Patient Pathway – Xeroderma Pigmentosum
About Marie Guillou
This author has not yet filled in any details.So far Marie Guillou has created 373 blog entries.
European patient organisations
Marie Guillou2024-04-05T15:44:46+02:00European patient organisations
IPPK – Patient Document – Presentation
Marie Guillou2024-04-05T12:53:38+02:00IPPK - Patient Document - Presentation
Family burden in inherited ichthyosis: creation of a specific questionnaire
Marie Guillou2024-04-05T12:29:11+02:00Family burden in inherited ichthyosis: creation of a specific questionnaire
IQoL-32: A new ichthyosis-specific measure of quality of life
Marie Guillou2024-04-05T12:27:22+02:00IQoL-32: A new ichthyosis-specific measure of quality of life
Hospital Anxiety and Depression Scale (HADS)
Marie Guillou2024-04-05T12:23:03+02:00Hospital Anxiety and Depression Scale (HADS)
Questionnaire: What you know about ichthyosis treatment?
Marie Guillou2024-04-05T12:14:32+02:00Quiz: What you know about ichthyosis treatment?
Questionnaire: What you know about ichthyosis?
Marie Guillou2024-04-05T12:14:50+02:00Questionnaire: What you know about ichthyosis?