Management of children with Epidermolysis Bullosa: Therapeutic education for parents and carers – in ENGLISH

Management of children with Epidermolysis Bullosa: Therapeutic education for parents and carers – in ITALIAN

Elaborated by the Ospedale Pediatrico Bambino Gesù and endorsed by the ERN-Skin

2022

Emergency management in epidermolysis bullosa: consensus clinical recommendations from the European reference network for rare skin diseases

Elaborated by the ERN-Skin

2020

Clinical practice guidelines for laboratory diagnosis of epidermolysis bullosa

Developed with the participation of ERN-Skin members

2019

Psychosocial Guidance for social and healthcare professionals/ epidermolysis bullosa (EB) teams

Recommended by the ERN-Skin

2019

Occupational therapy for epidermolysis bullosa: clinical practice guidelines

Recommended by the ERN-Skin

2019

Preventative nutritional care guideline

Recommended by the ERN-Skin

2019

Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines

Recommended by the ERN-Skin

2019

Foot care in epidermolysis bullosa: evidence-based guideline

Recommended by the ERN-Skin

2018

Skin and wound care in epidermolysis bullosa

Recommended by the ERN-Skin

2017

Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa: best clinical practice guidelines

Recommended by the ERN-Skin

2015

Pain care for patients with epidermolysis bullosa: best care practice guidelines

Recommended by the ERN-Skin

2014

Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa

Recommended by the ERN-Skin

2014

Oral Health Care for Patients with Epidermolysis Bullosa – Best Clinical Practice Guidelines

Recommended by the ERN-Skin

2012