List of the 24 European Reference Networks (ERNs)
Please find below the list of the 24 ERNs across the EU and Norway created under Directive 2011/24/EU on patients’ rights in cross-border healthcare.
| ERN name | Full name, factsheet and website |
|---|---|
| Endo-ERN | European Reference Network on rare endocrine conditions (FactsheetWebsite) |
| ERKNet | European Reference Network on rare kidney diseases (FactsheetWebsite) |
| ERN BOND | European Reference Network on rare bone disorders (FactsheetWebsite) |
| ERN CRANIO | European Reference Network on rare craniofacial anomalies and ear, nose and throat (ENT) disorders (FactsheetWebsite) |
| ERN EpiCARE | European Reference Network on rare and complex epilepsies (FactsheetWebsite) |
| ERN EURACAN | European Reference Network on rare adult solid cancers (FactsheetWebsite) |
| ERN eUROGEN | European Reference Network on rare urogenital diseases and complex conditions (FactsheetWebsite) |
| ERN EURO-NMD | European Reference Network on neuromuscular diseases (FactsheetWebsite) |
| ERN GENTURIS | European Reference Network on rare genetic tumour risk syndromes (FactsheetWebsite) |
| ERN GUARD-HEART | European Reference Network on uncommon and rare diseases of the heart (FactsheetWebsite) |
| ERN PaedCan | European Reference Network on paediatric cancer (haemato-oncology) (FactsheetWebsite) |
| ERN RARE-LIVER | European Reference Network on rare hepatological diseases (FactsheetWebsite) |
| ERN ReCONNET | European Reference Network on rare connective tissue and musculoskeletal diseases (FactsheetWebsite) |
| ERN RITA | European Reference Network on rare immunodeficiency, autoinflammatory and autoimmune diseases (FactsheetWebsite) |
| ERN TRANSPLANT-CHILD | European Reference Network on transplantation in children (FactsheetWebsite) |
| ERN-EuroBloodNet | European Reference Network on rare haematological diseases (FactsheetWebsite) |
| ERN-EYE | European Reference Network on rare eye diseases (FactsheetWebsite) |
| ERN-ITHACA | European Reference Network on rare malformation syndromes, intellectual and other neurodevelopmental disorders (FactsheetWebsite) |
| ERN-LUNG | European Reference Network on rare respiratory diseases (FactsheetWebsite |
| ERN-RND | European Reference Network on rare neurological diseases (FactsheetWebsite) |
| ERN-Skin | European Reference Network on rare, complex, and undiagnosed skin disorders (FactsheetWebsite) |
| ERNICA | European Reference Network on rare inherited and congenital (digestive and gastrointestinal) anomalies (FactsheetWebsite) |
| MetabERN | European Reference Network on hereditary metabolic disorders (FactsheetWebsite) |
| VASCERN | European Reference Network on rare multisystemic vascular diseases (FactsheetWebsite) |