List of the 24 European Reference Networks (ERNs)

Please find below the list of the 24 ERNs across the EU and Norway created under Directive 2011/24/EU on patients’ rights in cross-border healthcare.

ERN name

Full name, factsheet and website

Endo-ERN

European Reference Network on rare endocrine conditions (Factsheet – Website)

ERKNet

European Reference Network on rare kidney diseases (Factsheet – Website)

ERN BOND

European Reference Network on bone disorders (Factsheet – Website)

ERN CRANIO

European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders (Factsheet – Website)

EpiCARE

European Reference Network on rare and complex epilepsies (Factsheet – Website)

ERN EURACAN

European Reference Network on rare adult solid cancers (Factsheet – Website)

ERN eUROGEN

European Reference Network on rare urogenital diseases and complex conditions (Factsheet – Website)

ERN EURO-NMD

European Reference Network on neuromuscular diseases (Factsheet – Website)

ERN GENTURIS

European Reference Network on rare genetic tumour risk syndromes (Factsheet – Website)

ERN GUARD-HEART

European Reference Network on uncommon and rare diseases of the heart (Factsheet – Website)

ERN PaedCan

European Reference Network on paediatric cancer (haemato-oncology) (Factsheet – Website)

ERN RARE-LIVER

European Reference Network on rare hepatological diseases (Factsheet – Website)

ERN ReCONNET

European Reference Network on rare connective tissue and musculoskeletal diseases (Factsheet – Website)

ERN RITA

European Reference Network on rare immunodeficiency, autoinflammatory and autoimmune diseases (Factsheet – Website)

ERN TRANSPLANT-CHILD

European Reference Network on transplantation in children (Factsheet – Website)

ERN-EuroBloodNet

European Reference Network on rare haematological diseases (Factsheet – Website)

ERN-EYE

European Reference Network on rare eye diseases (Factsheet – Website)

ERN-ITHACA

European Reference Network on rare malformation syndromes, intellectual and other neurodevelopmental disorders (Factsheet – Website)

ERN-LUNG

European Reference Network on rare respiratory diseases (Factsheet – Website)

ERN-RND

European Reference Network on rare neurological diseases (Factsheet – Website)

ERN-Skin

European Reference Network on rare, complex, and undiagnosed skin disorders (Factsheet – Website)

ERNICA

European Reference Network on rare inherited and congenital (digestive and gastrointestinal) anomalies (Factsheet – Website)

MetabERN

European Reference Network on hereditary metabolic disorders (Factsheet – Website)

VASCERN

European Reference Network on rare multisystemic vascular diseases (Factsheet – Website)