Thematic groups ED – Documents – Grand public

Topic	Document	Draft/Final	Uploaded Date
Clinical OutCome Measures
Diagnosis
Emergency cards	English & French version English & German version	Final Final	2020 2020
Guidelines & Recommendations	Multidisciplinary consensus recommendations from a European network for the diagnosis and practical management of patients with incontinentia pigmenti	Final	2020
Patient documents	Everybody’s Different	Final	2020
Research	Safety and immunogenicity of Fc-EDA, a recombinant ectodysplasin A1 replacement protein, in human subjects Reliability of prenatal detection of X-linked hypohidrotic ectodermal dysplasia by tooth germ sonography	Final Final	2020 2018
Training