Tutorials
Discover a collection of videos and tutorials about rare skin diseases which are recommended and validated by ERN-Skin thematic groups.
Currently available videos about Albinism and Xeroderma Pigmentosum, Epidermolysis bullosa, Ichthyosis and Palmoplantar Keratoderma.
- Albinism and Xeroderma Pigmentosum:
- Learning about photoprotection for patients with albinism and xeroderma pigmentosum
- Epidermolysis bullosa:
- Epidermolysis bullosa and breastfeeding
- Hand mobility exercises for children suffering from epidermolysis bullosa
- Epidermolysis bullosa and oral hygiene
- Training on specific hand care for patients with epidermolysis bullosa
- Ichthyosis and Palmoplantar Keratoderma:
- Animation based on a true story
Learning about photoprotection for patients with albinism and xeroderma pigmentosum
Produced by FIMARAD
Validated by The ERN-Skin Cutaneous Diseases Related to DNA Repair Disorders Thematic Group
Epidermolysis bullosa and breastfeeding
Hand mobility exercises for children suffering from epidermolysis bullosa
Epidermolysis bullosa and oral hygiene
Training on specific hand care for patients with epidermolysis bullosa
Ichthyosis and Palmoplantar Keratoderma (IPPK) – Animation based on a true story
Red Scaly Baby – Animation based on a true story