ERN-Skin Webinar REPLAYS

Webinar on European Rare Diseases Research Alliance (ERDERA) – January 16th 2022

ERDERA proposal was submitted under Horizon Europe on 19 Sept. 2023 for funding under the EU Research & Innovation funding programme Horizon Europe as a co-funded partnership between the European Commission, European Member States, and beyond.

  • Presented by Yanis Mimouni and Daria Julkowska, European Joint Programme on Rare Diseases
  • Webinar PDF presentation: Have a look at the PDF presentation, click here

* Click on the image to access the webinar: Please note that you have to log in or to be logged in the member area to be able to watch the recording.

ERN-Skin Webinar: The role of ST18 in the pathogenesis of pemphigus vulgaris – February 28th 2023

ERN-Skin Thematic group on AutoImmune Bullous Diseases organized an ERN-Skin webinar on the role of ST18 in the pathogenesis of pemphigus vulgaris.

  • Presented by Dr Eli Sprecher (Tel-Aviv Sourasky Medical Center, Israel)
  • Chaired by Branka Marinović (ERN-Skin Thematic group on AutoImmune Bullous Diseases)

* Click on the image to access the webinar: Please note that you have to log in or to be logged in the member area to be able to watch the recording.

ERN-Skin Webinar: Developmental mosaicism in human skin disorders: a primer for the medical scientist – January 31st 2023

ERN-Skin Thematic group on Cutaneous Mosaic Disorders – Nevi & Nevoid Skin Disorders and Complex Vascular Malformations and vascular Tumours.

  • Presented by Marco Castori (U.O.C. Genetica Medica IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II, San Giovanni Rotondo)
  • Chaired by Andrea DIOCIAUITI, (ERN-Skin Thematic group Cutaneous Mosaic Disorders – Nevi & Nevoid Skin Disorders and Complex Vascular Malformations and vascular Tumours)

* Click on the image to access the webinar: Please note that you have to log in or to be logged in the member area to be able to watch the recording.

ERN-Skin Scientific Day – Online, February 19th 2021

The ERN-Skin organised its first ERN-Skin Scientific Day! It was a one-day meeting on transversal & research subjects of interest for rare skin diseases. Transversal subjects, methodology topics for RD clinical trials and clinical cases were presented and discussed by the ERN-Skin thematic groups and invited experts.

* Click on the image to access the webinar: Please note that you have to log in or to be logged in the member area to be able to watch the recording.