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Who are we?

We are the European Reference Network on Rare and Complex Skin Diseases a collaborative network aimed at improving the diagnosis, treatment, and management of rare and complex skin conditions across Europe.

Established under the European Reference Networks (ERNs) initiative, we connect healthcare providers, researchers, and patient organizations from various European countries to facilitate the sharing of expertise, resources, and best practices.

Our expertise

Divided into 9 thematic groups to efficiently cover the scope of rare skin diseases

Our network

56 hospitals from 20 countries and 15 patient representatives

Our actions

Focus on research, education & best practice, e-health and patient advocacy

Discover our network through our members

Pr. Christine Bodemer, our ERN-Skin coordinator alongside our clinicians, thematic group chairs, Skin ePAG Coordinator and Skin ePAG Representative provide you insights into the purpose, nature and development of our network

More about the ERN-Skin

E-learning Platform

Our E-learning Platform is dedicated to provide healthcare professionals with the knowledge and tools necessary to improve the care and outcomes for patients suffering from these complex rare skin conditions.

Key Features of our E-learning Platform:

  • Expert Lectures: Learn from leading experts in the field of rare skin diseases through video lectures
  • Assessments: Each course includes assessments to test your knowledge and understanding
  • UEMS Certification: Upon successful completion of our assessments, you will receive your certificate by the European Accreditation Council for Continuing Medical Education (EACCME®) demonstrating your commitment to continuous learning and professional development.

Resources for patients and professionals

Guidelines

For all thematic groups

Patient Satisfaction Survey

Available in 16 languages

Emergency cards

Already 6 available

Tutorials

Already 6 available

E-learning

Already 4 available

Patient journeys

Already 6 available

Learn more about ERNs

European Reference Networks are unique and innovative cross-border cooperation platforms between specialists for the diagnosis and treatment of rare or low prevalence complex diseases.