• AOU Città della Salute e della Scienza di Torino – Torino
• AOU Meyer di Firenze – Italy
• AOU Padua – Azienda Ospedale Università di Padova
• APHP – Hôpital Necker-Enfants malades
• ASL Tuscan Centre
• Barts Health NHS Trust
• Birmingham Children’s Hospital NHS Foundation Trust
• Children’s Health Ireland
• CHU de Toulouse
• Erasmus MC: University Medical Center Rotterdam

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• Emergency card IPPK – English (Long version)
• Emergency card IPPK – English (Short Format)
• Emergency card IPPK – English & German – Over Heat version
• Emergency card IPPK – French (Long version)

• Neonatal erythroderma: Step wise approach
• Management of congenital ichthyoses: European guidelines of care – Part I.
• Management of congenital ichthyoses: European guidelines of care – Part II.
• Ichthyoses – Part 2: Congenital ichthyoses
• Ichthyoses – Part 1: Differential diagnosis of vulgar ichthyoses and therapeutic options

• Care4Netherton is the project to improve the care for people with netherton syndrome, by defining outcome measures to evaluate care and therapy
• Ichthyosis Guidelines for Patients
• Ichthyosis Guidelines for Patients
• Red Scaly Baby – Animation based on a true story
• Saskia and her daughter Olivia talk about having Netherton syndrome and what this means in daily life

• Alternative to scratching – French
• Corrective makeup for ichthyotic skin – French
• Family burden in inherited ichthyosis: creation of a specific questionnaire
• Handbuch für Lehrer, Eltern und Schüler
• Handbuch Ichthyose Auflage 2015 Druck 2016-1 Patient Germ
• Hospital Anxiety and Depression Scale (HADS)
• Ichthyose – Merkblatt für Lehrer-2 School Germ
• IPPK – Patient Document – Presentation
• IQoL-32: A new ichthyosis-specific measure of quality of life
• Questionnaire: Coping skills

• Mutational Spectrum of the ABCA12 Gene and Genotype–Phenotype Correlation in a Cohort of 64 Patients with Autosomal Recessive Congenital Ichthyosis
• Proposal for a 6-step approach for differential diagnosis of neonatal erythroderma
• Hereditary palmoplantar keratoderma – phenotypes and mutations in 64 patients
• Meta-Analysis of Mutations in ALOX12B or ALOXE3 Identified in a Large Cohort of 224 Patients
• Treatment of hereditary palmoplantar keratoderma: a review by analysis of the literature
• Correction to: Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses
• Phenotypic Variability with SLURP1 Mutations and Diffuse Palmoplantar Keratoderma
• Genetical, clinical, and functional analysis of a large international cohort of patients with autosomal recessive congenital ichthyosis due to mutations in NIPAL4
• Burden of itch in ichthyosis: a multicentre study in 94 patients
• Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

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