Patient documents – IPPK
Marie Guillou2024-10-11T16:49:11+02:00Ichthyosis and Palmoplantar Keratoderma Patient documents Ichthyosis Guidelines for Patients Red Scaly Baby - Animation based on a true [...]
About Marie Guillou
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Patient documents – ED
Marie Guillou2024-10-15T16:26:31+02:00Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders Patient documents Everybody's Different Elaborated by the ERN-Skin 2019
Patient documents – EB
Marie Guillou2024-10-15T16:26:54+02:00Inherited Epidermolysis Bullosa and skin fragility syndromes – Darier disease – Hailey-Hailey disease Patient documents Debra international - EB patient guides and infographics [...]
Patient documents – DNA
Marie Guillou2024-10-15T16:25:55+02:00Cutaneous diseases related to DNA repair disorders Patient documents Patient Pathway - Xeroderma Pigmentosum Elaborated by the ERN-Skin 2020
Patient documents – ALLOCATE
Marie Guillou2024-10-15T16:24:19+02:00Acquired immunologicaL LOw prevalence and Complex AdulT diseases of thE SKIN Patient documents European patient organisations Elaborated by the ERN-Skin 2020 [...]
Patient documents – AIBD
Marie Guillou2025-03-04T11:02:58+01:00Autoimmune Bullous diseases Patient documents Patient jouney on bullous pemphigoid Elaborated by the ERN-Skin 2024 AIBD VADEMECUM english Elaborated by the [...]
Clinical OutCome Measures – ToxiTEN
Marie Guillou2020-11-09T15:29:15+01:00Severe cutaneous drug reactions (ToxiTEN) Clinical OutCome Measures
Clinical OutCome Measures – Mosaic
Marie Guillou2020-11-09T15:29:26+01:00Cutaneous Mosaic Disorders : Naevi & Naevoid skin disorders – Complex vascular malformations and cutaneous and subcutaneous vascular tumors Clinical OutCome Measures [...]
Clinical OutCome Measures – MCTD
Marie Guillou2020-11-09T15:29:38+01:00Mendelian connective tissue disorders Clinical OutCome Measures
Clinical OutCome Measures – IPPK
Marie Guillou2023-09-13T10:56:45+02:00Ichthyosis and Palmoplantar Keratoderma Clinical OutCome Measures